Genetic information: acquisition, access, and control

This diverse collection of papers attempts to address and discuss critically issues surrounding the control of, and access to, genetic information from ethical, medical, legal and theoretical points of view. Special reference is made to the implications of genetic information for eugenics, the insurance industry, commercialisation of genetic testing, strategies for raising public awareness and the value of theoretical, ethical and socialogical frameworks in the debate.

Machine derived contents note: Eugenics. 1. Can we Learn from Eugenics? D. Wikler. 2. Preventing Genetic Impairments: Does it Discriminate against People with Disabilities? H. Kuhse. Genetics and Insurance. 3. Private Parties, Public Duties? The Shifting Role of Insurance Companies in the Genetics Era; T. Lemmens. 4. Coercion Control, and Consequence in Genetic Testing: Views on Insurance among Tested Individuals and the General Public; R.N. Mayer, et al. 5. Genetic Testing and Adverse Selection in the Market for Life Insurance: Preliminary Findings for the BRCA1 Gene Mutation; K.R. Smith, et al. 6. Genetic Engineering and German Health Insurances; T. Uhlemann. 7. Selling Souls: Ethical Theory and the Commercialisation of Genetic Information; M. Johnston. The Commercialization of Genetic Information. 8. The Ethics of 21st Century Bioinformatics: Ethical Implications of the Vanishing Distinction between Biological Information and Other Information; D. Holdsworth. 9. There is Nothing Special about Genetic Information; S. Holm. 10. High Speed Genetic Testing Technology and the Computerization of the Medical Record; C.R. Naser. 11. Ethical Questions in the Pursuit of Genetic Informati…