Genetics, disability, and deafness

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Title Statements

Full title :Genetics, disability, and deafness / John Vickrey van Cleve, editor.

Summary

Pulitzer Prize-winning author Louis Menand begins this wide-ranging volume with an essay that extols diversity and warns of the dangers of modifying the human genome. Nora Groce reviews the ways that societies have defined disability and creates an interpretive framework for discussing the relationship between culture and disability. In essays devoted to historical perspective, Brian H. Greenwald comments upon the real "toll" taken by A. G. Bell's insistence upon oralism, while Joseph J. Murray weighs the nineteenth-century debate over whether deaf-deaf marriages should be encouraged. John S. Schuchman's chilling account of deafness and eugenics in the Nazi era adds wrenching reinforcement to the impetus to include disabled people in genetics debates. Mark Willis offers an intensely personal reflection on the complexities of genetic alteration, addressing both his heart condition and his blindness in surprisingly different ways. Anna Middleton extends Willis's concepts in her discussion of couples currently considering the use of genetic knowledge and technology to select for or against a gene that causes deafness. In the part on the science of genetics, Orit Dagan, Karen B. Avraham, Kathleen S. Arnos, and Arti Pandya clarify the choices presented by genetic engineering, and geneticist Walter E. Nance emphasizes the importance of science in offering individuals knowledge from which they can fashion their own decisions. In the concluding section, Christopher Krentz raises moral questions about the ever-continuing search for human perfection, and Michael Bérubé argues that disability should be considered democratically to ensure full participation of disabled people in all decisions that might affect them.

Edition Statements

Publication Date:2004.

Publication Statements

Publisher(s):Gallaudet University Press
Place of Publication:Washington, D.C
Language:eng
Publication Date:2004.

Notes

OldControl:muse9781563682797.

"Multi-User"

The Physical Object

Description:1 online resource

Edition Identifiers

ISBN:1563682796, 9781563682797
oclc:on1060940941
LC Classification:RF292
Dewey Decimal:617.8/042

Part 1. Science, culture, and human variation. The science of human nature and the human nature of science / Louis Menand ; The cultural context of disability / Nora Grace -- Part 2. Deafness and genetics : a troubled past. The real "toll" of A.G. Bell : lessons about eugenics / Brian H. Greenwald ; "True love and sympathy" : the deaf-deaf marriages debate in transatlantic perspectives / Joseph J. Murray ; Deafness and eugenics in the Nazi era / John S. Schuchman -- Part 3. The science of genetic deafness. The complexity of hearing loss from a genetics perspective / Orit Dagan and Karen B. Avaham ; The epidemiology of hereditary deafness : the impact of Connexion 26 on the size and structure of the deaf community / Walter E. Nance -- Part 4. The uses of genetic knowledge. Genes for deafness and the genetics program at Gallaudet University / Kathleen S. Amos and Arti Pandya -- Deaf and hearing adults' attitudes toward genetic testing for deafness / Anna Middleton -- Negotiating (genetic) deafness in a Bedouin community / Shifra Kisch ; Not this pig : dignity, imagination, and informed consent / Mark Willis -- Part 5. An era defined by genomic. Frankenstein, Gattaca, and the quest f…

Subjects

Conference papers and proceedings Deafness -- Congresses. -- Genetic aspe… Deafness -- Genetic aspects Deafness -- Genetic aspects -- Congress… Ear Electronic books ; local Essais Essay Essays Surdité -- Congrès. -- Aspect génétique