Patients as policy actors

Patients as policy actors

by Hoffman, Beatrix Rebecca

Type Book
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Patients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking. The authors in this volume illustrate, from multiple disciplinary perspectives, the unexpected ways that patients can matter as both agents and objects of health care policy yet nonetheless too often remain silent, silenced, misrepresented, or ignored. The volume concludes with a unique epi…

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Title Statements

  • Full title :Patients as policy actors / edited by Beatrix Hoffman [and others].

Summary

Patients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking. The authors in this volume illustrate, from multiple disciplinary perspectives, the unexpected ways that patients can matter as both agents and objects of health care policy yet nonetheless too often remain silent, silenced, misrepresented, or ignored. The volume concludes with a unique epilogue outlining principles for more effectively integrating patient perspectives into a pluralistic conception of policy-making. With the recent enactment of the Patient Protection and Affordable Care Act, patients' and consumers' roles in American health care require more than ever the careful analysis and attention exemplified by this innovative volume. -- Publisher's description.

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Edition Statements

  • Publication Date:©2011.

Publication Statements

The Physical Object

  • Description:viii, 309 pages : : illustrations ; : 23 cm.

Edition Identifiers

  • ISBN:9780813550503, 0813550505, 9780813550510, 0813550513
  • oclc:ocn669122282
  • LC Classification:R727.45
  • Dewey Decimal:362.1068

Table of Contents

Introduction : patients as policy actors / Nancy Tomes and Beatrix Hoffman -- Solitary advocates : the severely brain injured and their surrogates / Joseph Fins and Jennifer Hersh -- Physician-patient communication in the care of vulnerable populations : the patient's voice in interpersonal policy / M. Robin DiMatteo [and others] -- Is it time to push yet? The challenges to advocacy in American childbirth / Elizabeth Mitchell Armstrong and Eugene DeClercq -- A pound of flesh : patient legal action for human research protections in the biotech age / Lori Andrews and Julie Burger -- From outsiders to insiders : the consumer/survivor movement and -- Its impact on American mental health policy / Nancy Tomes -- "Don't scream alone" : the health care activism of poor Americans in the 1970s / Beatrix Hoffman -- The canary in Gemeinschaft : using the public voice of patients to enhance health system performance / Mark Schlesinger -- Patient appeals as policy disputes : individual and collective action in managed care / Marc Rodwin -- The power of us : a new approach to advocacy for rare cancers / Amy Dockser Marcus -- Patients and the rise of the nurse practitioner profession / Julie Fair…

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Subjects

Health Care Reform -- trends HEALTH POLICY Medical policy Medical policy -- United States Patient Advocacy Patient advocacy -- United States Patient-Centered Care -- trends Patienter Patients -- Civil rights Patients -- Droits Patients -- Droits -- États-Unis politique sanitaire Politique sanitaire -- États-Unis Sjukvårdspolitik United States

Writers

Hoffman, Beatrix Rebecca

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