Sickle cell disease (SCD) is a severe chronic illness and one of the world's most common genetic conditions, with 400,000 children born annually with the disorder, mainly in Sub-Saharan Africa, India, Brazil, the Middle East and in diasporic African populations in North America …
Sickle cell disease (SCD) is a severe chronic illness and one of the world's most common genetic conditions, with 400,000 children born annually with the disorder, mainly in Sub-Saharan Africa, India, Brazil, the Middle East and in diasporic African populations in North America …
Hemoglobin disorders or inherited blood diseases affect about 5% of the world population. One main category of these disorders is sickle-cell disease (SCD). SCD can cause many physical complications, such as kidney problems, leg ulcers, and chronic pain. Less frequently discusse…
Introduction: Among many complications of sickle cell disease, renal failure is the main contributor to early mortality. It is present in up to 21% of patients with sickle cell disease. Although screening for microalbuminuria and protienuria is the current acceptable practice to…
The purpose of the dissertation research is to describe the Qatif sociocultural response to children with sickle cell disease (SCD) and pain and how the Qatif sociocultural environment shapes the responses of children with SCD and pain. Significant outcomes of the project includ…
This dissertation draws from the social sciences, the humanities, and the field of medicine to chronicle how social life bears on forms of genetic knowledge. Relying on methods of ethnographic fieldwork, this research builds upon scholarship that takes seriously the ways genetic…
On average, black Americans are sicker and die earlier than white Americans. Uncertain Suffering provides a richly nuanced examination of what this fact means for health care in the United States through the lens of sickle cell anemia, a disease that primarily affects blacks. In…
As many as 80,000 African Americans have sickle disease (SCD). Though the political activism of the 1960s and a major 1970s health campaign spurred demands for testing, treatment, and education programs, little attention has been given to how families cope with sickle cell trait…
As many as 80,000 African Americans have sickle disease (SCD). Though the political activism of the 1960s and a major 1970s health campaign spurred demands for testing, treatment, and education programs, little attention has been given to how families cope with sickle cell trait…
